Our Cause & Need
Hereditary cancer often occurs at a younger age than sporadic cancer. Making the gravity of the situation even more frightening and confronting. Pink Hope ensures we are getting risk knowledge to individuals around the country, so they take control of their risk and future.
Support & Resources
We provide support and resources at each key touch point of the high risk journey. Ensuring each individual and family has the tools they need to take control of their hereditary health (we will provide programs and support such as a resources library, online genetic counsellor, online support groups)
Hereditary cancer is caused by a gene mutation/fault (either tested or inconclusive) that is passed from parent to child.
This raises complex issues within a family. As an organisation we help families start discussions that can share important health knowledge. The impact is therefore helping families at every stage of the high risk journey – to understand their risk and communicate it to other family members. Promoting early detection and identification. (Program: kiss and tell and our genetic counsellor)
Individuals who have inherited a gene fault may be at a higher risk for more than one type of cancer.
Navigating their families or individual risk can become challenging. The high risk family often requires ongoing support outside of the healthcare environment to deal with their anxieties and/or questions. Pink Hope will provide unique and tailor-made online resources.
The journey that high risk families face is ongoing with many questions and decisions they may face. For example: genetic testing for other family members, screening, cancer diagnosis and preventative surgery.
Our community needs reliable and easy to access support to help make the journey easier for them and their family. High risk families often face the impact of cancer across multiple family members. We provide an online genetic counsellor, programs and peer to peer support outreach days where they can feel a part of a community and are therefore better equipped to deal with their risk.
Often families within the general population do not know or understand their own risk. They either overestimate their risk because of a sporadic case of cancer or they under estimate their risk.
Through the media we will advocate for high risk families every day and empower the general population to understand their own risk. Our initiatives will include; Bright Pink Lipstick Day, Pinky Promise, Kiss and Tell, Online Genetic Counsellor.
High risk families are often in a position where several of their family members are facing varying stages of cancer or risk evaluation. They can often feel overwhelmed and isolated because of this.
We provide online and easy to access support. As an organisation we wear our heart on our sleeve and when we hear a story of hardship we want to help.
Awareness of health risks and the implementation of preventative strategies have long been demonstrated as appropriate ways to reduce potential long-term costs associated with the morbidity of certain chronic conditions. Based on the values calculated by Access Economics in their 2007 report, the lifetime economic costs (incorporating financial and burden of disease costs) associated with a younger woman who has been treated for breast cancer will be over $710,000 and for ovarian cancer over $1,000,000. With up to an 80% risk of breast cancer and up to a 60% risk of ovarian cancer associated with inherited gene mutations, the likelihood of an at-risk women being associated with these costs is high.
What are the preventative health benefits of Pink Hope?
Pink Hope has the potential to significantly reduce the incidence and costs of morbidity and mortality of breast and ovarian cancer on the Australian population by:
- Promoting open discussion around family cancer history;
- Increasing awareness in the general population of hereditary breast and ovarian cancer risk;
- Encouraging high-risk women to be vigilant and proactive with their breast and ovarian health, resulting in early diagnosis and treatment;
- Improving the health literacy of high-risk women and their families by providing clear, accurate and up-to-date information on genetic testing, risk management strategies, and health and wellbeing issues specific to this group;
- Acting as a haven of emotional peer support for members of the high-risk community as they come to terms with their status and work through the options currently available to manage their risk
- Working collaboratively with healthcare providers (e.g. Familial Cancer Clinics, General Practitioners, Breast Care Nurses, Breast Physicians, Gynae-oncologists, Plastic and Reconstruction Surgeons) to ensure seamless transition for high-risk women as they move through key ‘touch points’ in their high-risk journey.