Prevention Hub Announcement

22 Sep 2015 by Krystal Barter

Pink Hope & Peter MacCallum Cancer Centre launch the Australian Prevention Hub

Australians urged to understand their breast and ovarian cancer risk

Australians are being urged to better understand their family history of cancer, supported by a new partnership between the Peter MacCallum Cancer Centre and the Pink Hope charity who have joined forces to manage Australia’s first hereditary health hub.

The new prevention hub will include a programs manager and genetic counsellor based at Peter MacCallum Cancer Centre who will help people assess and manage their risk of hereditary cancers Australia-wide. In addition, further enhanced services and programs will be provided via the Pink Hope website: www.pinkhope.org.au.

Visitors to the website will be able to complete a robust assessment of their family history of breast and ovarian cancer, access credible information about these diseases and seek support and information from a genetic counselling service – provided by Peter Mac and Pink Hope. In addition, Pink Hope will be offering improved services where people can connect, share information and tap into peer support.

Krystal Barter Founder of Pink Hope, Australia’s first charity focused on preventative breast and ovarian risk says, Our aim is for all Australian women and men to complete the online assessment tool. This will equip them with knowledge of their own individual risk and give them the information they need to start a conversation with their healthcare professional. This tool has the power to save lives, it’s as simple as that.

Peter Mac Chief Executive Dale Fisher said there is growing community awareness of the hereditary nature of many cancers, with around 5% of Australian women having an increased risk of breast or ovarian cancer due to hereditary factors.

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“Our understanding of these risks is building all the time, as are evidence-based risk reduction strategies such as those to maximize the early detection of breast cancer. Women are encouraged to talk to their doctors about whether they are at increased risk and what they can do.

At the same time, more knowledge can give more power over these diseases. This includes greater choice and control in managing and reducing family-health related risks.

Working with Pink Hope, we aim to provide people with high quality, easily digestible information and support at their fingertips to extend the reach of services available in specialist hospital settings and Familial Cancer Clinics.”

According to Krystal Barter, the alliance is designed to save more lives.

The data collected by the Pink Hope will add to our understanding of how many Australians are at low, moderate or high risk of breast and ovarian cancer. This will further assist healthcare networks in providing meaningful resources to improve prevention and treatment strategies into the future.

“Demand for our services surged after Angelina Jolie shared her story of familial cancer so generously across the world. Australians clearly want to be proactive and in control of their health. Our alliance with Peter MacCallum aims to help more people do that.

The Prevention Hub will also provide rural and regional families with support services to understand their risks and take measures to protect themselves. We know that those in regional and rural Australia have a higher cancer death rate than those of their city counterparts so it is critical that they have access to tools to make managing their risk much easier.”

Krystal also stresses that it is important for both men and women to understand their personal and family cancer risk. The BRCA genes can be carried and inherited through women and men alike. Sadly Pink Hope is seeing young women with advanced stages of ovarian cancer who have inherited the gene from their father’s side of the family, finding out about their risk too late.

To get in touch with our Prevention Hub please email sue@pinkhope.org.au 

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