Sarah’s Story

07 Mar 2018 by Krystal Barter
Sarah’s Story

I am a 28 year old woman who recently made a very difficult but very necessary decision to under go a profolatic double mastectomy with nipple sparing and an expander on December 18th 2017.

My mother was diagnosed with stage 3 ovarian cancer at the age of 50 right before my 25th birthday. I was fortunate enough to be just old enough to undergo genetic counselling and brca testing. For better or worse, I tested positive for the brca1 gene mutation along with my mom and other members of my family. Having the brca1 gene mutation means having an elevated risk of developing both breast and ovarian cancer in your life time. My life time risk of breast cancer is 72% compared to the general population that has a 12% risk, and a 44% chance of developing ovarian cancer compared to 1.3% of woman in the general population that don’t have a gene mutation.

I do not and have never regretted my very difficult and life changing decision to undergo a profolatic double mastectomy. And one day before the age of 40 I will under go a profolatic bilateral salpingo-oophorectomy aka removing my ovaries and fallopian tubes.

I started a blog and made an Instagram, so other young woman like myself would know that they are not alone in this.

You are brave, beautiful and more powerful then you realise- you’ve got this!

I also want to empower and educate others that are not familiar with genetic testing, brca, profolatic mastectomies, and preventative check-ups.



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